We are so grateful to all those who have made donations to the Help Jackson fund. We are overwelmed by people's generosity. As Jackson heals, we are trying to focus on him and not the finances that inevitably will come. Thank you so much for your generosity. Those donations are making so we can not focus to heavily on the day to day finances. We want you to know that we consider those funds sacred. Thank you again!
Becca and I were able to spend some time with Jackson this afternoon. They have pulled Jackson completely off Dopamine, Yah! There plan was to keep him on a small dose but his blood pressure was getting too high. Takes after his Dad a little. Anyway, his heart rate is in the 90's which seems a little low but the doctor said that, "It was fine for him." Our Docs name is Dr. Bradley Yoder. He has truly been amazing he and the ECMO staff gather every morning at Jackson's bedside to discuss goals and status with little Jackson.
I talked with someone who was confused with the comment I made about swelling before. When I took the video in the last post Jackson was only at Primary Children's for one day. After the video his swelling did get worse; however, it has sense gotten better. You can see in these photos that his swelling has decreased. He may still have a misshapen head, but he doesn't look as swollen.
Today was a fun day. Becca sat at Jackson's bedside and hummed "I am a Child of God." A popular primary hymn in our church. It was so sweet to see my wives love for our little guy. Becca truly has a unique gift to look past the wires and tubes to Jackson's person. She is an inspiration. One of Jackson's nurses offered us a brush to style Jackson's hair. Becca styled Jackson's hair into a mohawk which was fun and we got pictures. One thing that is hard is not being able to bond with your baby. This is especially true for Becca. Today we were able to do a little to bond with our little boy.
I'm a friend of heather hodges. My last baby was in a very similar situation. He had tubes and machines all over him just like Jackson. It was so hard. I couldnt hold him or really touch him for about a week. I sang him primary songs. Well, I hummed them because when I tried to sing the words I cried too hard. My testimony of the truths in those songs was so strong. I know my son heard me and was comforted. Jackson looks like he is doing great! It's a hard thing to go through but my testimony that the lord loves me and is aware if me was strengthened so much through the experience. Enjoy your miracle baby! He will be home in your arms soon!
ReplyDeleteWhat a handsome little guy. Can't wait to see pictures of his mohawk!
ReplyDeleteSo glad to hear he is improving!
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ReplyDeleteWhat a tough kid Jackson is. It must be very nice to be able to spend more time with him...you all are always in our prayers.
ReplyDeleteHe is beautiful! I think he looks just like his dad. We'll be praying for you. We love you all.
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